It has been quite some time since I’ve posted anything, but things have been relatively stable…
I experienced my second instance with optic neuritis. Yet again, my right eye took the hit, but this experience was different than the last one. The best way to describe it was how the upper right quadrant of my vision had a thumb smudge in my visual equity.
Casey and I were finalizing our NZ trip plans (2/13/2021-4/1/2021), and about 4 days before we were scheduled to leave I was scrambling to get things figured out. Luckily I was able to get an appointment with an amazing ophthalmologist. It took about 3 months, but my temporary vision & color blindness scare is gone and things are back to normal.
Ohh yes, and I’ve finally been able to find a new neurologist! The new doc has a focus is on multiple sclerosis 🤩
I wanted to share an update/change on my multiple sclerosis medication from the oral Rx to the TYSABRI infusion. My infusions are every 6-weeks, and last two hours. The first hour is for the actual infusion, and then an hour for observation. I’m able to schedule future infusion appointments, which helps with any travel planning and what not. My first appointment was the morning of Friday 7/9/2021. I find the my infusion appointments relaxing, and I feel great after too. I like to think of the 2-hour appointments to treat myself, where I can used the time to bring something to read, listen to music, nap or do nothing.
To my surprise, I received a gift in the mail from Biogen, the maker of TYSABRI. The box contained some reading material, a book (Faces of A Fighter) from fellow TYSABRI infusion fighters and some useful cool accessories to take to the infusion center: a sleek 17oz water bottle, orange fuzzy blanket and a heating/cooling pad. All of the 3 accessories have an encouraging saying on them.
